| 1 |
Receiving the initial diagnosis |
Link Content |
| 2 |
Adjusting to changes in lifestyle and daily routines |
Link Content |
| 3 |
Adjusting to self-administration of injections |
Link Content |
| 4 |
Adjusting to the new normal after remission |
Link Content |
| 5 |
Adjusting to the use of a walker and wheelchair |
Link Content |
| 6 |
Anticipation of relapse and limited treatment options |
Link Content |
| 7 |
Anxiety and uncertainty during yearly tests and scans |
Link Content |
| 8 |
Being alone in the hospital room when receiving the diagnosis |
Link Content |
| 9 |
Being back in the caregiver's business |
Link Content |
| 10 |
Being hospitalized and experiencing severe health decline |
Link Content |
| 11 |
Being in ICU |
Link Content |
| 12 |
Being newly diagnosed |
Link Content |
| 13 |
Being open to receiving information and guidance from others who have experience with DCEP and CAR T transplant |
Link Content |
| 14 |
Changing retirement plans due to diagnosis |
Link Content |
| 15 |
Coming to terms with end-of-life prognosis |
Link Content |
| 16 |
Concerns about parents' resistance to safety measures |
Link Content |
| 17 |
Concerns about preexisting conditions (sleep apnea, obesity) |
Link Content |
| 18 |
Coping with declining health and limited options |
Link Content |
| 19 |
Coping with pain management issues |
Link Content |
| 20 |
Coping with the emotional impact of the journey |
Link Content |
| 21 |
Coping with the impact of the disease on personal life |
Link Content |
| 22 |
Coping with the loss of a loved one |
Link Content |
| 23 |
Coping with the need for regular dialysis sessions |
Link Content |
| 24 |
Coping with the non-curable and terminal nature of multiple myeloma |
Link Content |
| 25 |
Coping with the side effects of treatment |
Link Content |
| 26 |
Coping with uncertainty and fear |
Link Content |
| 27 |
Dealing with low function kidneys and blood clots |
Link Content |
| 28 |
Dealing with multiple health complications |
Link Content |
| 29 |
Dealing with physical and emotional pain |
Link Content |
| 30 |
Dealing with potential setbacks or relapse |
Link Content |
| 31 |
Dealing with setbacks or complications |
Link Content |
| 32 |
Dealing with the emotional impact of the journey |
Link Content |
| 33 |
Dealing with the relapse after successful treatment |
Link Content |
| 34 |
Dealing with ups and downs of the disease |
Link Content |
| 35 |
Doubting the effectiveness of the next round of treatment |
Link Content |
| 36 |
Embarking on the caregiving journey |
Link Content |
| 37 |
Emotional rollercoaster |
Link Content |
| 38 |
Experiencing a reaction to the new treatment |
Link Content |
| 39 |
Experiencing anxiety related to health |
Link Content |
| 40 |
Experiencing lack of response to treatment |
Link Content |
| 41 |
Experiencing relapse after initial treatment |
Link Content |
| 42 |
Experiencing side effects and complications during treatment |
Link Content |
| 43 |
Experiencing the loss of hope |
Link Content |
| 44 |
Experiencing the physical and emotional toll of treatment |
Link Content |
| 45 |
Facing the decision of whether to undergo a transplant |
Link Content |
| 46 |
Facing the need for immediate surgery |
Link Content |
| 47 |
Facing the possibility of death |
Link Content |
| 48 |
Facing the progression of the disease |
Link Content |
| 49 |
Facing the uncertainty of stem cell transplant |
Link Content |
| 50 |
Facing the uncertainty of the disease |
Link Content |
| 51 |
Facing uncertainty about the future |
Link Content |
| 52 |
Facing uncertainty and fear after receiving unexpected test results |
Link Content |
| 53 |
Facing uncertainty and fear during hospitalization |
Link Content |
| 54 |
Fear and uncertainty about the diagnosis and treatment |
Link Content |
| 55 |
Fear of negative outcomes if precautions are not taken |
Link Content |
| 56 |
Fear of the unknown |
Link Content |
| 57 |
Feeling alone and isolated |
Link Content |
| 58 |
Feeling anxious about potential Covid-19 exposure |
Link Content |
| 59 |
Feeling anxious and uncertain about the effectiveness and potential side effects of DCEP chemotherapy |
Link Content |
| 60 |
Feeling exposed and emotional when sharing the diagnosis with spouse |
Link Content |
| 61 |
Feeling frightened and questioning after diagnosis |
Link Content |
| 62 |
Feeling like the world is ending |
Link Content |
| 63 |
Feeling overwhelmed by the recent diagnosis and fracture |
Link Content |
| 64 |
Feeling poorly and not knowing the cause |
Link Content |
| 65 |
Feeling the emotional weight of caregiving |
Link Content |
| 66 |
Feeling uncertain about test results |
Link Content |
| 67 |
Feeling uncertain about the chosen treatment plan |
Link Content |
| 68 |
Final moments and passing |
Link Content |
| 69 |
Going through additional testing and procedures |
Link Content |
| 70 |
Going through bone marrow castration |
Link Content |
| 71 |
Handling ups and downs as a team |
Link Content |
| 72 |
Hearing the diagnosis for the first time |
Link Content |
| 73 |
Hearing the diagnosis of cancer |
Link Content |
| 74 |
Hearing the news of incurable cancer |
Link Content |
| 75 |
Hearing the word "cancer" and feeling scared and angry |
Link Content |
| 76 |
Initial diagnosis |
Link Content |
| 77 |
Investing in each other |
Link Content |
| 78 |
Long and hard journey of battling multiple myeloma |
Link Content |
| 79 |
Longing for more time together |
Link Content |
| 80 |
Losing hope as treatments fail |
Link Content |
| 81 |
Managing emotional and physical well-being throughout the journey |
Link Content |
| 82 |
Mental and physical toll of chemotherapy |
Link Content |
| 83 |
Need for education and understanding of the blood work |
Link Content |
| 84 |
Need for support and guidance in caretaker role |
Link Content |
| 85 |
Needing emotional support and reassurance during this challenging time |
Link Content |
| 86 |
Needing reassurance and encouragement |
Link Content |
| 87 |
Needing support and hope |
Link Content |
| 88 |
Needing support and understanding |
Link Content |
| 89 |
Needing time spaced away |
Link Content |
| 90 |
Not knowing where to turn or what to do |
Link Content |
| 91 |
Preparing for the upcoming stem cell transplant |
Link Content |
| 92 |
Processing the news of remission |
Link Content |
| 93 |
Questioning the future and contemplating the impact of the disease |
Link Content |
| 94 |
Receiving cancer diagnosis at a young age |
Link Content |
| 95 |
Receiving the call from the doctor |
Link Content |
| 96 |
Receiving the cancer diagnosis |
Link Content |
| 97 |
Receiving the diagnosis of multiple myeloma |
Link Content |
| 98 |
Receiving the diagnosis of Multiple Myeloma and AL Amyloidosis |
Link Content |
| 99 |
Receiving treatment and hoping for positive results |
Link Content |
| 100 |
Recovering from septic shock |
Link Content |
| 101 |
Reflecting on mortality and the fragility of life |
Link Content |
| 102 |
Reflecting on the impact of the disease on life and purpose |
Link Content |
| 103 |
Reflecting on the impact of the disease on the relationship |
Link Content |
| 104 |
Reflecting on the past year's challenges |
Link Content |
| 105 |
Reflecting on the potential impact of the journey on oneself and others |
Link Content |
| 106 |
Reliance on specialized care from the London unit |
Link Content |
| 107 |
Running out of treatment options |
Link Content |
| 108 |
Seeking reassurance about health concerns |
Link Content |
| 109 |
Seeking reassurance and guidance from others |
Link Content |
| 110 |
Seeking support and guidance from healthcare professionals |
Link Content |
| 111 |
Seeking support from a cancer coach |
Link Content |
| 112 |
Starting the clinical trial and facing uncertainty |
Link Content |
| 113 |
Struggling with the impact of fractures on daily life |
Link Content |
| 114 |
The crash and decline in health |
Link Content |
| 115 |
Transfer to hospice care |
Link Content |
| 116 |
Transitioning to palliative care |
Link Content |
| 117 |
Uncertainty about prognosis |
Link Content |
| 118 |
Uncertainty about treatment effectiveness |
Link Content |
| 119 |
Undergoing treatment and experiencing potential side effects |
Link Content |
| 120 |
Waiting for blood work results and fearing negative outcomes |
Link Content |
| 121 |
Waiting for bone marrow biopsy results |
Link Content |
| 122 |
Waiting for remission confirmation |
Link Content |
| 123 |
Waiting for results to determine remission status |
Link Content |
| 124 |
Waiting for test results |
Link Content |
| 125 |
Waiting for the outcome of CAR-T therapy |
Link Content |
| 126 |
Waiting for treatment plan confirmation |
Link Content |
| 127 |
Watching the body deteriorate |
Link Content |
| 128 |
When analyzing and understanding information from healthcare professionals |
Link Content |
| 129 |
When facing test results and medical appointments |
Link Content |
| 130 |
When making decisions about treatment protocols |
Link Content |