Emotional Intelligence Report |Multiple Myeloma

Surface Behaviors

S. No. Behavior Content
1 Anemia leading to hospital stay Link Content
2 Apologies for needing help Link Content
3 Balancing quality of life with safety precautions Link Content
4 Blood transfusion Link Content
5 Caregiver role and responsibilities Link Content
6 Carrying the bag of test results and medical information Link Content
7 Chemotherapy treatment Link Content
8 Clinical trial participation Link Content
9 Collection of stem cells for future transplant Link Content
10 Complete response to CAR-T Link Content
11 Completion of 47th infusion Link Content
12 Concerns about new strain of Covid-19 Link Content
13 Considering a second opinion Link Content
14 Daily check-ins to monitor vitals Link Content
15 Darzalex treatments with no improvement Link Content
16 Dating throughout high school Link Content
17 Declining health and physical symptoms Link Content
18 Desire for a longer caregiving period Link Content
19 Diagnosis of cancer Link Content
20 Diagnosis of MGUS (starting of Multiple Myeloma) Link Content
21 Diagnosis of multiple myeloma Link Content
22 Diagnosis of Multiple Myeloma and AL Amyloidosis Link Content
23 Dialysis 3 times a week for 4.5 hours Link Content
24 Dialysis schedule and continued treatment Link Content
25 Difficulty catching breath while biking Link Content
26 Embracing faith, family, and personal passions as sources of strength Link Content
27 Emergence of large mass around kidneys Link Content
28 Emotional impact on the narrator Link Content
29 Engaging in mountain climbing for fundraising Link Content
30 Enjoying golf and family time at the beach Link Content
31 Exhaustion of treatment options Link Content
32 Expecting to live for decades Link Content
33 Experiencing a reaction to Darzalex Link Content
34 Experiencing CRS (Cytokine Release Syndrome) Link Content
35 Experiencing fatigue Link Content
36 Experiencing improvements in physical abilities Link Content
37 Experiencing physical symptoms and side effects Link Content
38 Expressing concern about differences in treatment options between countries Link Content
39 Expressing concern about the trial data and side effects Link Content
40 Expressing excitement and relief Link Content
41 Feeling great Link Content
42 Feeling poorly and not training enough Link Content
43 Feeling relieved Link Content
44 Feeling shocked and overwhelmed by unexpected changes in health status Link Content
45 Finding new meaning and opportunities in life Link Content
46 Flying back for a bone marrow castration Link Content
47 Frailty and exhaustion Link Content
48 Frightened and questioning after diagnosis Link Content
49 Gathering loved ones for end-of-life support Link Content
50 Getting married in 1968 Link Content
51 Going on Darzalex treatment Link Content
52 Going through rounds of therapy and treatment Link Content
53 Gradual adjustment to new circumstances Link Content
54 Gradual improvement in mobility Link Content
55 Growth of mass despite treatment Link Content
56 Health-related anxiety Link Content
57 Hopefulness and optimism despite setbacks Link Content
58 Hoping for a long remission Link Content
59 Hospital visits every 4 weeks for daratumumab injection Link Content
60 Hospitalization and isolation Link Content
61 Hospitalization and palliative care Link Content
62 Hospitalizations and medical interventions Link Content
63 Immediate neck surgery for bone damage Link Content
64 Induction chemo for 12 cycles Link Content
65 Initial symptoms of neck pain Link Content
66 Keeping the focus on the present moment and decision-making Link Content
67 Knowing the next steps and potential pitfalls Link Content
68 Kyphoplasty procedure Link Content
69 Lack of understanding of test results Link Content
70 Letting go of previous commitments and activities Link Content
71 Looking for support and advice from others who have gone through similar treatment Link Content
72 Low function kidneys Link Content
73 Managing symptoms from treatment Link Content
74 Meeting on Cape Cod Link Content
75 Meeting with nurse to discuss questions Link Content
76 Mental health decline Link Content
77 Monitoring blood tests and scans Link Content
78 Monitoring blood work and test results Link Content
79 Monitoring Kappa/Lambda ratio Link Content
80 Need for information and support Link Content
81 Need to make significant changes in life Link Content
82 Not currently undergoing multiple myeloma treatments Link Content
83 Optimism fading as treatments fail Link Content
84 Opting out of transplant Link Content
85 Over a dozen fractures Link Content
86 Pain management issues with older fractures Link Content
87 Planning for future travel and life goals Link Content
88 Planning for the future Link Content
89 Primary caretaker role Link Content
90 Progression to smoldering myeloma Link Content
91 Receiving a call from the doctor Link Content
92 Receiving a diagnosis of cancer Link Content
93 Receiving biopsy results Link Content
94 Receiving complete response from treatment Link Content
95 Receiving news of remission Link Content
96 Receiving positive feedback from healthcare professionals Link Content
97 Receiving stem cell treatment Link Content
98 Receiving treatment in the doctor's office Link Content
99 Receiving updates on disease progression Link Content
100 Recognizing that the ultimate decision rests with Deb Link Content
101 Reduction of M spike and myeloma in bone marrow and kidneys Link Content
102 Reflecting on past year Link Content
103 Reflecting on the journey Link Content
104 Regularly visiting the oncologist Link Content
105 Relapse after stem cell transplant Link Content
106 Remission after 6 months of treatment Link Content
107 Researching CAR-T therapy Link Content
108 Responding to Darzalex Link Content
109 Restarting treatment with revlimid and other drugs Link Content
110 Resuming normal activities Link Content
111 Retirement Link Content
112 Retiring and selling their house Link Content
113 Rising lambda count indicating relapse Link Content
114 Routine physical check-up Link Content
115 Scheduling activities around good days Link Content
116 Seeking advice on treatment options Link Content
117 Seeking alternative treatments and clinical trials Link Content
118 Seeking help from a myeloma specialist Link Content
119 Seeking information and experiences about DCEP chemotherapy Link Content
120 Seeking information online about disease prognosis Link Content
121 Seeking support and prayers Link Content
122 Seeking support from a cancer coach Link Content
123 Self-administration of bortezomib injections at home Link Content
124 Setting goals and creating a plan for treatment Link Content
125 Sharing diagnosis with loved ones Link Content
126 Sharing good news of remission Link Content
127 Sharing information about the recent diagnosis and fracture Link Content
128 Sharing the news with others Link Content
129 Specialist unit in London for Amyloidosis care Link Content
130 Starting treatment for myeloma Link Content
131 Staying positive despite the challenges Link Content
132 Stem-cell transplant Link Content
133 Struggle to balance various responsibilities Link Content
134 Struggle to get up and get through the day Link Content
135 Supportive phone calls and check-ins Link Content
136 Systematic process of coming to terms with changes Link Content
137 Taking Revlimid and prophylactic drugs Link Content
138 Test results within "normal" range Link Content
139 Transition to CAR-T therapy Link Content
140 Treatment no longer working Link Content
141 Treatment with Dara-Revlimid-kyprolis-dex Link Content
142 Treatment with Darith Tumamal Link Content
143 Treatment with darzalex, revlimid, velcade, and decadron Link Content
144 Treatment with DVTD (daratumumab, bortezomib, thalidomide, and dexamethasone) Link Content
145 Treatment with Teclistomab Link Content
146 Trying a new treatment option (Darzalex) Link Content
147 Undergoing chemo Link Content
148 Undergoing intensive treatment Link Content
149 Urging parents to discuss concerns with oncologist Link Content
150 Use of heavy chemotherapy options Link Content
151 Use of walker and wheelchair Link Content
152 Volunteering at a junior college Link Content
153 Waiting and praying during infusion Link Content
154 Waiting for paraprotein numbers Link Content
155 Wishing for a smoother journey for others Link Content
156 Withdrawing cells for engineering Link Content
157 Working remotely during treatment Link Content
158 Yearly tests and scans to monitor protein levels Link Content

Vulnerable Moments Show All

  1. Receiving the initial diagnosis
  2. Adjusting to changes in lifestyle and daily routines
  3. Adjusting to self-administration of injections
  4. Adjusting to the new normal after remission
  5. Adjusting to the use of a walker and wheelchair
  6. Anticipation of relapse and limited treatment options
  7. Anxiety and uncertainty during yearly tests and scans
  8. Being alone in the hospital room when receiving the diagnosis
  9. Being back in the caregiver's business
  10. Being hospitalized and experiencing severe health decline
  11. Being in ICU
  12. Being newly diagnosed
  13. Being open to receiving information and guidance from others who have experience with DCEP and CAR T transplant
  14. Changing retirement plans due to diagnosis
  15. Coming to terms with end-of-life prognosis
  16. Concerns about parents' resistance to safety measures
  17. Concerns about preexisting conditions (sleep apnea, obesity)
  18. Coping with declining health and limited options
  19. Coping with pain management issues
  20. Coping with the emotional impact of the journey
  21. Coping with the impact of the disease on personal life
  22. Coping with the loss of a loved one
  23. Coping with the need for regular dialysis sessions
  24. Coping with the non-curable and terminal nature of multiple myeloma
  25. Coping with the side effects of treatment

Choice Points Show All

  1. Determining when to resume normal activities
  2. Balancing caregiving responsibilities with personal life
  3. Choosing between different medical opinions
  4. Choosing between different treatment options
  5. Choosing how to manage side effects and symptoms
  6. Choosing the treatment plan, including induction chemo
  7. Choosing to address health-related anxiety
  8. Choosing to continue the fight and not give up
  9. Choosing to embrace faith, family, and personal passions for strength
  10. Choosing to embrace the journey and find strength in it
  11. Choosing to find new meaning and opportunities in life
  12. Choosing to focus on living life and finding ways to help others in similar situations
  13. Choosing to hang in there and strive for the best
  14. Choosing to have hope
  15. Choosing to invest in the relationship
HXP Logo