Today we found out that my wife is in remission. The biopsy showed no myleoma cells and her Kappa/Lambda ratio is back to normal. Just waiting on some paraprotein numbers before the consultant will say it’s a full remission. This time last year she was in hospital recovering from septic shock a spell in ICU and being given the cancer diagnosis - what a difference a year has made. Now we can get on with our lives and hope for a long remission

I posted here about 8 months ago asking for any success stories with MM and kidney failure. My dad had less than 5% kidney function and a really bad prognosis. I really thought it was going to be goodbye…

BUT he actually doing GREAT. He responded well to his chemo and bone marrow transplant AND is off dialysis. I’m not sure what his kidney function is right now, but I it’s at least 50% and they are still healing. The treatment gets better and better each year. He went to Emory in Atlanta and they have been amazing. I lost hope and was thankfully proven wrong so, don’t be like me. I’m so thankful to be able to share this story because I couldn’t find many like it.

Hello everyone.

I’m new to the sub. I Thought I’d get to know the community a bit with an easy opener:

How old were you when diagnosed and how long have you been in the fight?

I was 30. I’m 38 now. Found it due to severe back pain. Collapsed vertebrae.

All sorts of other details I could give (like everyone else here), but generally I’m okay. I’m always in treatment. Have had very little remission - more just assisted suppression.

I Still work full time despite a lot of pain. But as my favourite phrase goes, it could be worse. I’ve seen plenty of people in worse shape.

So I’m grateful :)

Would love to hear from everyone about how long you’ve been in the fight (without being too too long a novel).

First post on here. My mom (61F) got diagnosed in September with mm after she was hospitalized due to a fall. The oncologist said if they did stage it - it would be stage 3. She has multiple spinal compression fractures and after being in and out of the hospital physical therapy says that they can’t really do much. They recommended the family work the bed exercises with her. She’s has had 3 rounds of chemo (velcade) and targeted radiation therapy on her spine. Right now she has excruciating back pain and screams when she tries to stand. On her best days at the hospital she’s able to stand for about 3 seconds with support. The doctors said she is not a good candidate for the Vertebroplasty.

Are there other options? Will she always be bed bound?

I would love for someone to explain this disease to me. I also have hemochromatosis. How can I be anemic and have to blood let to reduce my iron count. My next appt is Dec 1st..but I have alot of questions. I have rib pain, spine pain and now my leg in the hip area is hurting, is this normal. I just turned 63.
Thanks for any help and I will welcome PMs.

Hello, my very previously healthy thought he had arthritis - which turned into fractures, and a new diagnosis of light chain MM. I haven’t seen the levels of that blood test. Dad had pet scan last week. Has been in outpatient chemo for three weeks. Have a meeting with oncology doc.
What questions should I be asking. He is 77 lives alone / single? Having a hard time eating. Willing to try medical marijuana to increase appetite. Anemic. Wants to just drink juice. His creatinine has been elevated.

This is what we are thinking. Anything else would be helpful.

What stage is he in and what is the prognosis?
Where is the extreme hip pain coming from? Is there radiation or other treatment that can target that area?
What are the dental work restrictions? Cleaning, drilling, numbing agents? Can he get lidocaine or other injections on the same day as infusion?
Prescription refills? BPM (NORVASC), antiviral (ZOVIRAX), uric acid preventer (ZYLOPRIM).
What can he take for constipation? What should he NOT take?
Is he immunosuppressed? Should he be getting vaccines?
What should he do if he falls or gets an illness like a cold?
Do we need to see a specialist for kidneys?
We want to get palliative care set up now, can you give us a referral?
If time: Is stem cell transplant an option? Will we be adding more chemo drugs like revlimid? When will he have more tests like bone marrow biopsy or scans?

When did your feet stop swelling? Does it stop after the SCT?

Can anyone give me an approximation of when the tiredness & sickness occurs after the injections? The darzalex and velcade are subcu on Friday, velcade again on Monday. Just trying to give my boss a reasonable amt of hrs I can work - I'm in a highly deadline driven environment.

Looking for an MM specialist in or around Las Vegas. Good friend is getting substandard care and conflicting information.

My dad, aged 67 is going through his aHSCT procedure now. The following is the sequence of events.

Day 1: G-SCP injection

Day 2: G-SCP injection

Day 3: G-SCP injection
Day 3: CD34 count = 3

Day 4: Plerixafor injection
Day 4: CD34 count = 16
Day 4: Doctor doubtful to continue with harvest, but in the end agrees to Harvest.

That's where we are at the moment.

The doctor said that with a CD34 count of 16, the yield of Stem Cells will be less than 2 million cells per kilogram of body weight. He expects maybe 1 million cells.

We will do another dose of plerixafor and then Harvest again.

According to the doctor, minimum is 2 million cells per kg bodyweight for transplant.
However I'm reading online that the minimum is 5-6 million cells.

Can anyone shed their experience or advice on this?

-----------Update-------------

Day 4: The Harvest Yielded 1.33 million cells

Day 5: Plerixafor injection
Day 5: Second Harvest

The growth drugs given are:

G-CSF - Neukine ---> Biosimilar of Neupogen
https://www.medicinesfaq.com/brand/neukine#:~:text=%2C%20Zarxio%2C-,Neupogen%2C,-pegfilgrastim%2C%20Udenyca

Plerixafor ---> Mozobil is the brand name it seems. (really useful page to understand it's purpose and side effects)
https://www.mozobil.com/healthcare/about-mozobil#:~:text=Information%20for%20Mozobil%20(-,plerixafor,-)%C2%A0injection

Thanks @LeaString for the names of the growth and mobilizer injections for comparison (I've added links to confirm). If there other options of these injections please do let me know.